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7. INTERVENTIONS FOR AUTISM/INFORMATION AND LINKS
7.1 Organisations devoted to dietary/metabolic aspects of autism
7.2 Organisations for follow up autism assessments
7.3 Local specialist lending library (books and software)
7.4 Useful Websites
7.5 ABA Providers
7.6 Teaching Materials
7.7 Local shops with teaching materials
There are many educational, behavioural, medical and dietary interventions for autism, all of which have worked to remarkable effect upon some sectors or subsets of these children. The NAS have a new guide out in March 2001 ‘Approaches to Autism', cost £6, outlining the various forms of intervention.
7.1 Organisations devoted to dietary/metabolic aspects of autism (Back to Top)
AiA - Dynamic group devoted to providing information and promoting research into autism as a metabolic disorder, dietary interventions, immunisations, and other linked physiological issues. Regular newsletter, new parents resource pack for members. Tel: 01252 663967/01733 331771. (Interactive website at www.AutismMedical.com)
Autism Research Unit - School of Health Sciences, University of Sunderland, Sunderland SR2 7EE. Unit run by Paul Shattock and Paul Whiteley. Establishment working on theory of opioid-peptides entering the bloodstream and affecting the brain, due to a leaky gut system caused by intolerance of gluten and casein (milk protein). The unit will test urine samples for around £50. Results take just a few weeks. Contact them for information on urinary peptide testing (for intolerance of gluten and/or casein), and guidelines on the implementation of a glutenfree/casein free diet for people with autism and related disorders. Tel: 0191 510 8922. (NB: ‘Special Diets for Special Kids'by Lisa Lewis - Book on GFCF diets available through National Autism Society Publications Department. Also books by Marilyn Le Breton)
Great Plains Laboratory
9335 West 7th Street, Overland Park, KS66204, USA
Tel -001 - 913-341-8949
Tests and consultations, designed for children with autism, developmental
disorders and related conditions, available on Organic acid levels, common food
allergies, immune deficiencies, amino-acids, vitamin profile, essential fatty
acids, metals, inhalants IgE.
(The tests are not cheap but worldwide this is the foremost commercial medical
testing establishment for autistic children)
Kirkman Laboratories.USA
Tel: 00- 1- 503 694 1600
Advanced research into medical causes of autism. World's largest suppliers of
dietary supplement for autistic children and adults, especially Super Nu Thera
and DMG/TMG.
Bernard Rimland - US researcher with lifetime research into autism and medical interventions. Based at the Autism Research Institute (ARI) in San Diego. Good details on B6 and magnesium supplements/secretin etc. See website www.autism.com/ari
Fax 001(619) 563 6840.
Royal Free Gastro-paediatric unit. Dr Simon Murch. Your GP can refer you here if you are concerned about your child's on-going digestive problems, constipation and/or diarrhoea.
7.2 Organisations for follow up autism assessments (Back to Top)
Elliot House, Centre for Social and Communication Disorders - 113 Masons Hill,
Bromley, Kent, BR2 9AT. Tel: 020 8466 0098.
Children seen for diagnosis only following a health service/consultant's
referral. If the CDC have not reached a diagnosis or you do not agree with their
diagnosis, you could request the CDC to refer your child here for a second
opinion.
Adder - 62 Oakhurst Grove, London SE22 9AQ. Tel: 020 8480 0391
Local parent support group Haringey Autism have their own lending library covering many aspects of autism. Any Haringey carers or parents of a child with autism or Haringey professionals involved with the care of children with autism are welcome to borrow from the library. The books are available at Haringey Autism's monthly meeting or contact the librarian directly. Julia Wilkins 020 8889 8422. For a latest catalogue of books available: Click Here
Haringey Autism Computer/Software group have a good collection of software suitable for children of all abilities on the autistic spectrum aged 2 - 19, covering language development, academic skills, social and cognitive skills. Also some hardware for loan, subject to availabilty... A small computer Club is presently being set up for children to attend - for more details Click Here. The software is available for free loan at Haringey Autism monthly meetings (see Meetings section) or at the computer club. Contact Julia for further information on 8889 8422.
NAS - UK-wide general information on autism, and information on types of
intervention, information on NAS-run schools and other services, etc.
www.nas.org.uk
Autism London - new and developing site for parents of autistic children in
London.
www.autismlondon.org.uk
AFASIC - UKorganisation for all children with speech and communication
problems
www.afasic.org.uk
AIA - (Allergy Induced Autism) - UK group for parents providing information
and research updates about autism as a metabolic disorder, diet, immunisation
and other linked physiological issues.
www.autismmedical.com/
www.AutismMedical.com (This is an excellent interactive website where you can pose your questions about your child's diet/health and get an informed answer back very quickly. It also has a great list of all the GFCF (gluten and casein free) products available - both brand and supermarket names)
Center for the Study of Autism. Leading US base for autism studies.
www.autism.com
Bernard Rimland. THE grandfather of international research into dietary
intervention. Details of recommended doses of B12/magnesium, updates on secretin,
etc etc. Based at the Autism Research Institute, USA.
www.autismwebsite.com/ari/index.htm
Great Plains Laboratory, USA
Company offering advanced blood and urine tests on autistic children to test for
intolerances, deficiencies, etc.
www.greatplainslaboratory.com
Kirkman Laboratories, USA
Similar to above, providing research into causes of autism. Largest supplier of
dietary supplements for autistic children and adults. Best -selling products
Super Nu Thera (mega-vitamin and mineral supplement designed for autistic
children) and DMG
www.kirkmanlabs.com
OASIS - Online Aspergers Syndrome Info and Support
www.udel.edu/bkirby/asperger
PEACH - Parents for the Early Intervention of Autism in Children (UK
organisation for parents running or interested in running a home-based
Lovaas/ABA intervention programme)
www.peach.org.uk
PACE - Islington-based national pressure group for education of children with
autism.
www.pace-uk.org
PECS - Picture Exchange Communication System
www.pecs-uk.com
Talking Point. Information and support for all speech and language difficulties. A site for parents and professionals.
www.talkingpoint.org.uk
SIGNING. Makaton.
www.makaton.org
The Centre for the Study of Autism & Associated Syndrome & Research
www.autism.org
Education
A.C.E. Advisory Centre for Education. An independent education advice centre.
www.ace-ed.org.uk
National list of special schools by region providing places for children with autism and Asperger's (independent and LEA maintained) provided by the Surrey Branch of the NAS www.mugsy.org/schools.htm
Free teaching resources designed for autistic children to download from
internet including lots of pictures for activity schedules.
www.dotolearn.com
Site with downloadable speech therapy activities.
www.speechteach.co.uk
Others - general
www.autismconnect.org - link to numerous sites about autism
Online autism magazine
www.autismfile.com
Autism Independent UK, formerly known as SFTAH
www.autismuk.com
Gluten/Casein-free diets
Literature
Jessica Kingsley www.jkp.com
Amazon (have a large selection of titles about autism)www.amazon.co.uk
Future Horizons - Publishing co on literature about autism and Asperger's www.futurehorizons-autism.com
7.5 ABA Providers (Back to Top)
(ABA stands for Applied Behavioural Analysis, an intensive method of teaching autistic children based upon breaking learning tasks down into small manageable components, and implementing a system of rewards and motivation, fast becoming the standard method of teaching in the US, and growing fast in the UK.)
PEACH - Parents for the Early Intervention of Autism in Children. A parent-run support group for families running or interested in running home programmes based on the ABA/Lovaas approach. Tel: 01344 882248.
UK Young Autism Project. - Part of UCLA Multi-site Young Autism Project. Tel: 020 8392 3931.
LEAP - London Early Autism Project. A clinic providing treatment for autistic children and turnkey ABA/Lovaas home programmes. Tel: 020 7736 6688.
CARD - Centre for Autism and Related Disorders. A centre providing ABA home programmes. Tel: 01689 837373.
BIG (Behavioural Intervention Group). www.big4autism.com. The Centre for Educational Intervention in Early Childhood. Duncan Fennemore Tel: 01306 631868.
Independent ABA supervisor Slaveia Kouchalieva -can set up and supervise home programme, troubleshoot behavioural issues etc. Mobile: 07956 833854.
(Schools providing ABA teaching include TreeHouse, Prior's Court, Jigsaw, and Rainbow at Beatrix Potter. Details from PEACH)
7.6 Teaching Materials (Back to Top)
See also Section 7.3 for books and software..
Computer software and hardware
REM - Basic skills and Special Needs catalogue. Call for a copy of their special needs catalogue, and also the Pre-school and primary software catalogue. Tel: 01458 254700. Website: www.r-e-m.co.uk
General teaching materials
ELC (Early Learning Centre) - Wood Green High Street.
Teaching Trends, 160, High Road, East Finchley.N2 9AS. (Closed Mondays).